Pediatric palliative care
Code
11219
Academic unit
Nova Medical School | Faculdade de Ciências Médicas
Department
TRA - Woman, Children and Adolescent's Medicine
Credits
3
Teacher in charge
Dra. Ana Forjaz Lacerda
Teaching language
Portuguese
Objectives
· Definition of pediatric palliative care
· Principles of palliative care
· Differences from adults
· Levels of provision
· Identification of the target population in Pediatrics
· Illness trajectories in Pediatrics
· Models of service organization
· Needs of the child & family
· Individual care plans
· Communication with child & family
· Informed decision making
· Communicating bad news
· Grief and bereavement: phases, tasks and support
· Protection and social benefits for the child with chronic illness & family
· Principles and organization of educational support
· Interdisciplinary collaboration: the role of the doctor in teamwork
· Interinstitutional collaboration (including tertiary primary care)
· Homecare
· Transitioning to adult services
· Legal issues
· Ethical questions limiting/withdrawing therapies/interventions; terminal sedation; decision making
· Terminal care symptom control, psychosocial support
· Role of non-governmental organizations in provision of pediatric palliative care
Prerequisites
Subject matter
1. Principles of pediatric palliative care;
2. Palliative care needs in Pediatrics;
3. Nacional and international scenario;
4. Servisse organization;
5. Care planning;
6. Ethical questions in pediatric palliative care;
7. Communication with the child and family;
8. Health and disease in childhood;
9. Grief;
10. Social support;
11. Role of school and education;
12. Role of play;
13. Interdisciplinary articulation;
14. Interinstitucional articulation;
15. Experience of the Pediatrics Departament of the Portuguese Institute of Oncology - Lisbon;
16. Experience of the Hospital de Dona Estefânia, CHLC;
17. Experience of the Neonatal Intensive Care Unit of the Hospital S. Francisco Xavier, CHLO;
18. Experience of the pediatric homecare teams;
19. Clinical case discussions.
Bibliography
· www.cuidandojuntos.org.pt
· Cuidados paliativos pediátricos uma reflexão. Que futuro em Portugal? 2013, Fundação Calouste Gulbenkian.
· FACTS. Cuidados paliativos para recém nascidos, crianças e jovens. Fondazione D'Onlus. Roma, 2009.
· IMPaCCT - standards for pediatric palliative care in Europe. Eur J Palliat Care 2007; 14 (3): 109-14.
· Larcher V et al. Making decisions to limit treatment in life-limiting and life-threatening conditions in children: a framework for practice. Arch Dis Child 2015; 100 (suppl 2): s1-s23.
· Levine D et al. Best practices for pediatric palliative cancer care: a primer for clinical providers. J Supp Oncol 2013; 11(3): 114-125.
· WHO. Guidelines on the pharmacological treatment of persisting pain in children with medical illnesses. Geneva, 2012.
Teaching method
In this Unit the following methods will be used:
· lectures
· tutorials
· clinical attachments
· practical classes
· assessment through a family case study:
o PowerPoint presentation and discussion
poster presentation (90x 140 cm, readable at 2 meters)
Evaluation method